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Endometriosis Diagnosis Delays: 'I Thought I Was Dying' at 14

Ellie Colton shares her journey with endometriosis, highlighting the average 8-9 year diagnosis delay and ongoing research for better tests.

·1 min read
From above of crop anonymous African American female lying on couch and touching belly while having stomach ache

Ellie Colton's Experience with Endometriosis

When Ellie Colton was 14 years old, she believed she was dying. However, medical professionals initially dismissed her symptoms as 'just bad periods'. After enduring years of severe pain, she was eventually diagnosed with endometriosis, a gynecological condition that affects approximately 1 in 10 women. Her experience reflects a common issue, as the average time to receive an endometriosis diagnosis in the UK is 8 to 9 years.

Exploring Diagnosis Challenges

Ellie investigates the reasons behind the prolonged diagnosis period for endometriosis, often referred to as 'endo'. During her exploration, she meets a woman who underwent the removal of a perfectly healthy appendix due to a misdiagnosis. Additionally, Ellie speaks with a scientist who is developing a straightforward diagnostic test aimed at assisting many women in obtaining a timely diagnosis.

Additional Resources and Media

This content was produced by BBC Ideas in partnership with UK Research and Innovation (UKRI). For further information on UKRI's research into endometriosis diagnosis, please refer to the external resources provided.

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View the program Emma Barnett: Fighting endometriosis available on BBC starting Monday, 1st June 2026.

Listen to Ellie Colton's interview on BBC Radio Sheffield Breakfast.

💡 For more informative videos, visit BBC Ideas.

This article was sourced from bbc

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